" Dear Sir/Madam,

I am writing to ask for your kind help to save my son's life.
On August 27 this year, my 3-year-old son was diagnosed as having serious congenital heart diseases (single ventricle, transposition of great arteries and pulmonary hypertension) in China. The diagnosing doctors told my wife that my son's diseases were highly rare, complex, dangerous and almost incurable in China. My wife and I are in the deepest despair.

I am studying in Australia and am trying to seek possible international help, which seems to be the only opportunity for my son. Our economic situation is poor and cannot afford international medical expenses. So any help or information about charitable medical organizations and possible financial support will be highly appreciated. To find more possible help from the kind people all over the world, we hope this message could be spread out. My address in Australia is as follows:

Deng Yongxin Soil Science and Plant Nutrition The University of Western Australia Nedlands, Western Australia 6907 Australia Fax: (61 8) 9380 1050 email: ydeng@agric.uwa.edu.au My wife and my son's address in China is as follows: Han Dan Xinjiang Institute of Geography 40th South Beijing Road Urumqi, Xinjiang 830011 P. R. China Fax: (86 991) 3837482 email: xjgi@ms.xjb.ac.cn

All my family would be extremely grateful if you would like to give us help in whatever way.
Thank you very much!

Yours sincerely,
Deng Yongxin   "
 

Date: Sat, 18 Oct 1997 19:59:08 GMT +0100 (Scandinavia) To: ydeng@agric.uwa.edu.au From: BOES.ORG Subject: Your son Dear Deng Yongxin! Hard situation. I think, the best we can do is to publish Your text from our website. Please send us an official version written exactly as You want to describe the situation. You do not need to use lots of words. The text in the mail You've sent us is OK, but I do not know if You want to hide some of the information, as confidential. For example the names?, addresses?..and maybe other details? Send us the text within 24 hours. We want to let it be readable from our site when the CHOGM 97 (International Conference in London) opens up on monday morning, and we will have some hour of work to prepare documents, links, and to upload. Best Regards to You and Your family Bo Sandberg, founder of BOES.ORG

 
Date: Sun, 19 Oct 1997 03:24:59 GMT +0800
To: BOES.ORG
From: ydeng@agric.uwa.edu.au (Yongxin Deng)

" Dear Mr. Sandberg,

Thank you so much for your kind reply and willingness to help. I will always remember them.

I luckily found your address in ONEWORLD homepage (http://www.oneworld.org/).
Thank you for giving me the opportunity to publish my mail in your website. I would very much like to have it published and I do not want to hide any information.

Thank you again.

Yours sincerely,
Deng Yongxin   "
 

Date: Sat, 18 Oct 1997 22:49:10 GMT +0100 (Scandinavia) To: ydeng@agric.uwa.edu.au From: BOES.ORG Dear Deng Yongxin! Received. Bye and Good Luck! Hope we can find some kind of help, but no guarantee. bo sandberg     Date: Sun, 19 Oct 1997 00:07:22 GMT +0100 To: ydeng@agric.uwa.edu.au, xjgi@ms.xjb.ac.cn From: BOES.ORG Subject: Photo wanted Dear Deng Yongxin and Han Dan! You can find Your message about Your son, at the internetaddress: www.boes.org/justice.html both from the left frameindex and from the Main Index. I hope it will give some kind of result. Are You able to contact som heavy newspapers, and give them the internetaddress. It would be very fine if some newspaper started an action, together with us. They could collect money, and contacts. All the best wishes for both of You - and for Your son named ... Bo Sandberg Please - send us a photo - as an image-file, .gif or .jpg and I will complete the Urgent Action web-page with the photo, and his name.

Date: Sun, 19 Oct 1997 13:09:47 GMT +0800 To: BOES.ORG From: ydeng@agric.uwa.edu.au (Yongxin Deng) Subject: More information about our son. " Dear Mr. Sandberg, Thank you so much for you kind help. May I tell you some information about my son and his disease? My son's name is Deng Shao-han. He was born on August 10, 1994. He is a very smart and lovely boy. After I came Australia as a visiting researcher on August 2 1997, his diseases were diagnosed on August 27. My wife had him re-diagnosed in another hospital and learned the same horrible results. My wife was told that my son's diseases were hardly curable in China and this made her in complete despair. She did not even tell me my son's diseases until Oct 11 because she thought that I could do nothing but get broken-hearted in Australia. I am extremely sad and I know that I could not do anything really helpful for my son if I went home now, although I miss him much more than ever. I must stay here, with better communication conditions, to ask for and expect some help from those kind people in this world. My wife is eagerly expecting good news from me. This is the only hope for my son. ..............The problem now is that the money needed for the international treatment is far too much to us and I am trying find some financial aid.............. I do not know how to contact newspapers and would be very grateful if you would like to teach me. May I post a copy of my son's pictures to you? Because I am not sure if an image-file of his pictures could be produced here. Yours sincerely, Deng Yongxin  "

Date: Sun, 19 Oct 1997 15:12:27 GMT +0100 (Scandinavia) To: ydeng@agric.uwa.edu.au From: BOES.ORG Subject: Photos Hello Friend! You wrote: "I do not know how to contact newspapers and would be very grateful if you would like to teach me. May I post a copy of my son's pictures to you? Because I am not sure if an image-file of his pictures could be produced here." My answer: Write a letter and tell media about Your son, how You searched the net and how the newspaper can read the "Urgent Action"-file from BOES.ORG. This will later serve as a very good example, how media can help, and how the Internet can be used for very good things - and HAVE TO - instead of all bad things on the net. Try some wellknown paper in Australia. You will find the e-mailaddress in the actual paper. I am also working on to rise a media-interest, for example jn the US. Better chance if we have more than one "channel". I'm in need of the photo as fast as possible. Give them some diskettes, "floppy-discs", to copy the images into. Select .gif or better .jpg as file type. Send the files attached to an ordinary e-mail. It's very easy. Ask someone for assistance if You're not sure how to do. If You are able to visit a big newspaper today. Go to it's Photo-section. Ask them to help You with the scanning. And talk with the editor about Your son. After Your visit there, complete Your information to me with an e-mail too. Yours sincerely, Bo Sandberg www.boes.org ____________________ OneWorld OnLine Partner BOES.ORG -Children's Rights Across the World - Multilingual Human Rights - voluntary engagement - independent - non-profit - all activities in the spirit of The Convention on the Rights of the Child

Sun, 19 Oct 1997 23:47:06 +0800
To: BOES.ORG
From: ydeng@agric.uwa.edu.au (Yongxin Deng)
Subject: Photos and thanks!

" Dear Mr. Sandberg,

Thank you so much for your more help. I will try to send out the photos tomorrow.

I am a newcomer here and many common things in western sociaties are actually new to me. I am sorry for that.

Yours sincerely,
Deng Yongxin   "
 

Date: Sun, 19 Oct 1997 17:31:59 GMT +0100 (Scandinavia) To: ydeng@agric.uwa.edu.au From: BOES.ORG Subject: photos II OK Deng I think I have an idea from where I can get some e-mail addresses for australian newspapers. And tomorrow I will use some of them. You have better to be concentrated to get the scanning/images-files done/made at the University!! Relax about the newspapers. Hope it will be done in any way. Your friend Bo     Date: Sun, 19 Oct 1997 18:48:55 GMT +0100 To: ydeng@agric.uwa.edu.au (Yongxin Deng) From: BOES.ORG Subject: Don't worry Don't worry Deng! Now You have to relax a little, from all this searching of people and contacts all around. As soon I have the photos You can go back to Your studies. I think You have been using both the days and the nights, like I use to do myself. I am not pessimistic about Your son. Yours sincerely Bo

We are both SO sleepy after all our days and nights in action. Beside the communication between Yongxin Deng and me, an intensive work is ongoing to give a World wide attention for little Shao-han, to get support for a lifesaving action.

Date: Mon, 20 Oct 1997 09:51:32 +0800 (WST)
To: BOES.ORG
From: Y Deng
Subject: Send photos!
" Dear Mr Sandberg,

I am sending two of my son's photos to you. The scaning machine here cannot save the photos in .gif or .jpg, so I have to send them in another form.

Thank you.
Yours,
Deng Yongxin   "

Attachment Converted: C:\EUDORA\ATTACH\Ydeng1
Attachment Converted: C:\EUDORA\ATTACH\ydeng2
...from the SSPN scanner.
 

Date: Mon, 20 Oct 1997 04:51:54 GMT +0100 (Scandinavia) To: ydeng@agric.uwa.edu.au From: BOES.ORG Subject: Re: Send photos! Received, but something has gone wrong with the filetype-description. The filename/filetype I need is .gif or.jpg Sorry, Couldn't open them. Ask someone for Your help. I have to go to bed now. The clock is 05.00 AM "again", here in Sweden. My head is mostly blowing out now. Bye Deng, Best Regards     Date: Mon, 20 Oct 1997 05:31:00 GMT +0100 To: ydeng@agric.uwa.edu.au From: BOES.ORG Subject: no filetype There are no file-type named on the files. I have the possibility to open also other files than .jpg and .gif. But these are impossible to open. Did you use an Apple/Mac or a Windows PC for the scanning? Some rather simple moment has gone wrong during the scanning process. Select filetype before the scanning or when saving the file after scanning. Some processes in some softwares, requests to type the file-type manually, from the keyboard. Name examples for a working file: yong1.tif yong1.gif yong1.jpg yong1.bmp ...or same other filetype Try to select the filetype from the beginning of the scanning process. And make a test of the image file/photo-file in another computer before You send them. Than You know if it works or not. Have to sleeeep Good Luck Deng I'm so tired now. Hard to remember my own name

Date: Mon, 20 Oct 1997 11:45:43 +0800 (WST)
To: BOES.ORG
From: xxxxx@agric.uwa.edu.au (Terry Judd)

" Dear Mr Sndberg,

I am terribly sorry and thank you for your efforfs for my son. I am sending the Photos again as an attachment. Hope it will work this time.

Yours,
Deng Yongxin   "

Attachment Converted: C:\EUDORA\ATTACH\Scan1.jpg
Attachment Converted: C:\EUDORA\ATTACH\Scan2.jpg
-----------------------------------------------------
Dr Terry Judd
Computer-aided Learning

Faculty of Agriculture    Ph: +61-8 9380 xxxx
University of Western Australia    Fax: +61-8 9380 xxxx
Nedlands WA 6907 Australia    Email: xxxxx@agric.uwa.edu.au
-----------------------------------------------------
 

Date: Mon, 20 Oct 1997 11:09:26 GMT +0100 (Scandinavia) To: xxxxx@agric.uwa.edu.au (Terry Judd) From: BOES.ORG Subject: To Deng Yongxin Message to Deng Yongxin Dear Yongxin! What a lovely boy (and wife) You have. My eyes are wet. I will use the photo "scan2.jpg" together with the text, in the contacts I am going to take. Later today, I have to be away from the computer most of the day for other very important issues around the BOES.ORG-financing and survival. Thanks to You Youngxin and to the persons helping us. Best Regards from Bo     Date: Mon, 20 Oct 1997 12:08:27 GMT +0100 To: ydeng@agric.uwa.edu.au From: BOES.ORG Subject: OK The photo is on the web pages now Also check out the links "Points of View" and "Children's Rights Across the World" at the address www.oneworld.org/chogm97 I am talking about the small "BOES.ORG-chogm" website you'll find there, about the Future. Also check your son's link on the page "Future IV" regrds bo Click for full size photo in new window

Date: Mon, 20 Oct 1997 18:57:28 +0800
To: BOES.ORG
From: ydeng@agric.uwa.edu.au (Yongxin Deng)
Subject: Thank you!

" Dear Bo,

Thank you so much for everything you have done for my family. I will tell my wife and my son about you.

I love my son and my wife very much. I hope I could give my healthy heart to my son.
My wife is extremely unhappy now because of my son's diseases and because I am not in home with her at this painful time. She will certainly feel better if I tell her how you and others are helping her son.
The most important thing is that you have given us hope.
Thank you for this.

Yours,
Yongxin   "
 
Date: Fri, 24 Oct 1997 01:35:38 +0800
To: BOES.ORG
From: ydeng@agric.uwa.edu.au (Yongxin Deng)
Subject: About saving my son

" Dear Mr. Sandberg,

Thank you for your help to save my son, Shao-han.

Please be informed some things happened in recent days. I received a very long letter from my wife today. She told me everything about Shao-han's diagnosis on Aug. 27, the diagnosing doctor's ideas, and her hopeless days after the diagnosis. Because she was made to believe that we could do nothing to save our son, she had intended to hide all these from me to the day I go home.
However, I asked her about our son's health in a call to home, and upon hearing my question, she got out of conrol and cried. I knew my son's disease from that day, Oct. 11, but I didn't know how she had spent the 45 days in complete despair and in the painful love to me.

Not until I read this ten-page-long letter, which she wrote in those days but did not send out. She did not want me being in despair too, because I was far away from home, alone here in Australia. I love her more!

The diagnosing doctor told my wife it was a miracle that my son was still alive and we should get ready to have the second baby instead of this one. But my son "is" alive, although with serious problems. And I love him even more after I learned the tragedy of his heart. I was in despair in the first several days, but I am in hope now. I would like to do anything to save him, but the only useful thing I can do now is to ask for other people's help. I did and am doing!

.........Meanwhile, Shao-han's condition is getting worse.
From today's international call, I learned that Shao-han was taken to hospital today and had several tests done ----X-ray, ECGs and blood test. X-ray shows that blood clots have appeared in his lungs. His doctor found his lips had begun to turn blue. My heart is bleeding for my son!

This is a long mail, and I hope it would make as many as people know our story. Even most of them are not in the position of giving us help, I believe they will prey for us and will love their family more.

Thank you for reading.
Yours sincerely,
Deng Yongxin   "
 

Date: Thu, 23 Oct 1997 23:51:30 GMT +0100 (Scandinavia) To: ydeng@agric.uwa.edu.au From: BOES.ORG Subject: Re: About saving my son Dear Yongxin! I also do pray for Your son. I have a feeling that something good will happen. Until now I have taken a lot of contacts, days and nights. Newspapers, TV-producers and so on. No result yet. More contacts, more praying, from Your friend Bo I never give up on this Best regards for Your son, for Your wife and for You

October 26:  A whomen in Oregon, USA, contacted us today. One week after Shao-han's father sent his cry for help to BOES.ORG, Mary Anne Wehland was searching the Internet for LandMine Campaign Sites. BOES.ORG was one of the websites in the search result. Her instant reaction after seeing the Shao-han-photo above and reading the text about him: "The world is too rich to let this kid die without a fight", and immediately started an US non-profit Shao-han fund for transport, treatment and follow up care. "We may raise 100 or we may raise a million. But we gotta try", the whoman of Civilian Courage declared.

 
  The first US-media contacts from BOES.ORG for Shao-han's survival

Date: Wed, 29 Oct 1997 00:31:06 +0800 To: BOES.ORG From: ydeng@agric.uwa.edu.au (Yongxin Deng) Subject: Thanks! " Dear Bo, To begin with, I have to say that you do have very good feelings to future things. Everything possibly good to us happened! Thank you! .............. I will give my special thanks to you, my friend, I won't forget that it is you who gave me a hand and hope first. Lots and lots of thanks to all those who have prayed for us, supported and helped us! Please continue to pray for my son, Shao-han. Yours, Yongxin   "

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