Human Rights / Children's Rights Across the World
 
Lei Anne Pearl & Lyrize Julienne - Twins
Olongapo City, Philippines         Lifesaving Action
Incoming Letter. February 2002
BOES.ORG/internetlifeline
 
Dear Bo Eric,
 
I am Leilani A. Mangalonzo, Olongapo City. I have a twin niece, Lyrize Julienne A. Escoton and Lei Anne Pearl A. Escoton, now seven months old, both girls, born July 14, 2001 to my sister, Liza Alam and Elde Escoton in Saudi Arabia.
 
The twin was diagnosed to have Congenital Heart Disease after birth and it was attributed to the chemicals my brother used in the farm where he worked as machine operator. (My sister was diagnosed to have cysts on her breasts and Dr. Forest advised her to undergo an operation or get pregnant within six months. My brother in law was not allowed to go home because it was then planting season and he was in-charged of all machines used in the farm. In the employer’s consideration of the situation, he sponsored my sister’s stay in Tabouk, Saudi Arabia).
 
Upon arrival in the Philippines last January 1, 2002, we found ways to have the children diagnosed in Philippine Heart Center. With a referral from my father’s former employer, a certain Dr. Ed Villacorta, the twin had their 2D Echo (the results I sent to Ms. Jennifer Domingo) We were then referred to the Philippine Heart Center by Dr. Leus and after series of visits, the twin’s case were presented last February 1 and the case presentation was led by Dr. Juliet Banderas. We also went to Dr. Collado, a volunteer for your organization, and seek for her third opinion and the recommendation for the twin to be accommodated in your program.
 
Lyrize had been hospitalized in Saudi last December due to difficulty in bowel movement, and it was just then the doctors found she has a CHD. She was 2D echoed. She was confined for more than a week, treating also her bronchitis.
 
While in Lei Anne’s case, at birth, the doctors found she is a Dextrocardiac. They found her heartbeat very fast so was examined. But fortunately for Lei Anne, she did not suffer for any sickness/ailments not until they came to the Philippines. Here, she always has cough.
 
As of today, the girls had already undergone (3) 2D Echos; ECG, and X-ray.
 
I browsed the internet and read about Jerden’s diary and from what I’ve read, I felt there is still something for the twins. We’re losing hope because of their complicated (especially Lei Anne’s) case but after browsing, I felt the burden became lighter. As Eden said, there’s still hope, we just have to do the right steps, the right moves and find the right persons who would help.
 
As of today, the kids are getting bluer or blacker? They always have cough. Lei Anne had been X-rayed and the result is good. Both of them is on Augmentin; Lyrize takes Ambroxol, and Cechlor. Lyrize is irritable. She can’t sleep well even at night. My sister can not sleep also because Lyrize doesn’t want to be put on bed. They just stand and dance the whole night and day long.
 
Bo Eric, the reason why Dr. Leus referred us to Heart Center is our incapability to pay for private services. She referred us to Philippine Heart Center Social Services Department so we can have the financial assistance from different charitable institutions whom we can solicit for donations, but we’re informed they will be charging 380 thousand pesos for Lyrize. Honestly, we don’t have such amount, my brother in-law is just an ordinary OFW earning money enough for food and other needs of his family.
 
After various explanations on the twin’s case, we are now more frightened of their plight. Lyrize Julienne Escoton We were informed Lyrize should undergo an operation the soonest time possible and for Lei Anne, it will depend on what the Foundation would say / find.
 
Please HELP US. Next to GOD, YOU are our only source of hope. The kids are very lovable, joyous, inspite of their condition. I can’t help crying every time I see them giggling, fighting for life. At the back of my mind, I always think of how long or up to when can we have them. I’m doing this because I believe these kids have their own right to grow up, to live in this world and be of service to God and to the people around them. I also believe I am not contradicting God’s plan for them because when Jerden’s case was brought to my attention, it is His way of saying, “Hey, Lani, Move! Help the kids live their lives. Go and talk to people whom I’m sending for help.” And these people are you and the whole of the other institutions supporting kids with heart ailments.
 
Thank you for the attention you’re giving to each family who suffers from the same problem we have. May God’s blessings be with you and your sponsors always.     / Lani

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